Well, my life just seems to keep getting more and more full. I have found myself saying lately that I felt like everybody was taking little pieces of me, and when it was all said and done, there was nothing left for me. Not a good place. But, I was frantically but thankfully able to attend the Women of Faith conference in Phoenix a couple weeks ago and although it wasn't real 'restful' I found it to be incredibly inspirationally filling. It filled me up with weeks worth of spirituality. Just incredible. So amazing.
I have been tolerating the additional medication OK. My hands and feet are showing the signs of the meds now, extremely dry, red, cracked, peeling - really attractive. And my big toenails are once again revolting. Not sure if this is just me though - I remember having issues with my big toenails in the past, and maybe this is just magnifying them. Lifting, etc. So gross and embarrassing. I start to complain and think - well - if this is the worst, you can deal, you've been through so much worse - then I think - NO! I'm just pissed I have to go through ANYTHING - and the vicious cycle starts once again. Oy. It just never gets old - so exhausting. I go for my appt on Friday, and will have a full body CT scan at that time. According to my doc - should we see the tumor has indeed grown again, which, I believe that is has, we will talk an additional increase in medication. Also, there are a couple more theresphere procedure that have been developed since my last one, which was a year ago next month - can you believe it? Well, instead of radiation being distributed onto the liver, actual chemo therapy will delivered there and will dispersed on a time lapse basis. Pretty cool eh? He seems to think I will qualify for this protocol. I am hopeful. PJ is coming with me this time, so I am taking great comfort in that. He hasn't been to these appointments with me for almost a year now - because of his new job. Weird eh? I am excited to spend the day with him - like the old days of having our 'cancer time'. AAAaaahhhhh. Our sweet cancer time. Isn't that funny. Still searching for the blessings. Just keep searching, just keep searching - they are always there miraculously enough.
Once again my trust in Him needs sharpened a bit - I'm getting much better about it I must say. One thing I got from the conference I attended was the words of Andy Andrews - who is an AMAZING speaker. Funny, down to earth, and not at all the 'preachy' type. He gave me this nugget - as long as you are sitting here breathing, God is not done with you yet. As long as you are sitting here breathing, there is hope. I luv luv luv this. I used to pray for just enough - but now I pray for abundance - so I can share with others. Praying for just enough seems selfish - so I pray for abundance of everything, so I can share and love on others. I know God has something very important, very specific in mind for me - and I can't wait to be led to it. Jut gotta keep my God ears on so I can hear the Holy spirit guide me.
I'm taking a class at the local theater to assist me in writing my one woman show then I get to perform it in May of next year. This is good for me, not that I necessarily need assistance writing it, but need someone to answer to to make sure I take the time to write it in the first place. And I really love the space - it's an old church, over 100 years old, that has been converted into a theater. I know this is where I'm supposed to do this show. So, I am on my way.
My Ginger had a breakthrough seizure a couple weeks ago, so we increased her meds and I watch her closely. I'm also going to start buying gluten free stuff and start to phase out dairy. I need to try - so I'm going to. Slowly. Not easy, but they actually make all sorts of stuff now that is super yummy - no difference. We'll see. This seizure happened on Madeline's school campus, just after I picked her up. It was not as big of a seizure as previous ones, not at all, but lots of vomit and this is the first time she's had one in 'public'. It was so 'revealing' - didn't much care for that feeling. Still working through it.
I realized after seeing my good friend Martha, that I had never posted the final pics of my new boobies - well, here they are. You'd think after all I went through, they would be perfect, but they are just like every woman's real ones, and they don't exactly match. Go figure. But I love them, my husband loves them, and I'm so glad I went through the whole reconstruction process. It sucked, but well worth it. I miss not feeling anything, I don't think that will ever go away. But so happy to have boobies - and perky ones to boot.
That's it for now - will post once I have my appt on Friday and let everyone know the outcome. Thanks for hanging with me - I know I don't post as much as I'd like, but am blessed that I am so busy being a wife, caretaker, daughter - and mommy - my most favorite role in the world. Sometimes, I need to just be Dina, and I gotta find where I can fit that in. She is kinda the one who started all these roles, and she needs tended to, tenderly.
God Bless -
They are perfect boobs! Love your updates! Love you and your humor. You are an inspiration!
ReplyDeletePJ, I going through all Dina's posts as I'm deciding if I want to go through the pain of new boobies. I'm really thinking no! I just don't want to go through anymore pain. I have decided to go off my meds (anti hormone pills) as they are really messing up my joints. When I can't work on my quilts every day, well, to me that's not living the life I want. So, if you don't mind, I'll be commenting on Dina's posts as if she is here with me now advising me. God bless you and the wee girls. :0)
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